Kinari

Everyone has a deep secret. Today I am revealing my biggest yet! For years, I have hidden that... I AM TERMINALLY ILL Yes me, that smiley spirited character – here is a snapshot into my challenging and difficult journey. I hope it educates, inspires and challenges your perception of those with my condition. Here is my story as a PHighter… I have been keeping a secret Life hasn’t always been normal for me growing up. I have been slowly dying since I was about 16 and I didn’t even know it. Neither did you! See that’s the thing about life, its fragile and unpredictable. Each day is a precious gift, not a given right. I choose to tell my story today, as  today is Rare Disease Day  and my time on earth is precious. It has taken a lot of courage for me to make myself vulnerable to you all. One in a million I guess you can say I am a 1 in a million kind of girl! Shortly after my 25th birthday, I was finally diagnosed with Idiopathic Pulmonary Arterial Hypertension (PH) aft